http://news.scotsman.com/latest.cfm?id=3654417
Mother to Beg Judge to Let Sick Baby Live
By PA News Reporters
A mother who refuses to give up hope for her desperately-ill baby son arrived at the High Court today for a legal battle over his chances of survival.
Ruth Winston-Jones has described nine-month-old Luke as “a little fighter” and is set to tell a top judge why she disagrees with doctors who say he should not be resuscitated if his condition deteriorates.
Dame Elizabeth Butler-Sloss, president of the High Court Family Division, is being asked to rule on what should be done in the best interests of Luke, who suffers from a rare genetic disorder.
The scheduled two-day public hearing in London follows a judge’s ruling earlier this month giving doctors permission not to ventilate tiny premature baby Charlotte Wyatt if her breathing stops.
In Luke’s case, the Royal Liverpool Children’s NHS Trust and North West Wales NHS Trust are seeking a court declaration on what treatment is required and what should be withheld in the absence of agreement between doctors and his mother.
Ms Winston-Jones, 35, from Holyhead in North Wales, says she will fight the doctors’ application, which she describes as “a death sentence”.
She is separated from her husband and has two other children – Andrew, 12, and Sophie, seven.
Luke was given only a short time to live after he was diagnosed with Edwards Syndrome. He also suffers from a hole in the heart.
Babies born with Edwards Syndrome, also known as Trisomy 18, have an average life span of under two months, with less than 10% surviving more than a year.
Sufferers appear thin and frail, fail to grow properly and have difficulty feeding.
An appeal fund, supported by the Duchess of York, was set up to fund Luke’s care shortly after his birth.
Ms Winston-Jones made no comment as she arrived at the High Court today surrounded by her lawyers.